A simple point about My Health Record

I haven't been following the argument all that closely, but I would not be alone in getting the impression, from listening to privacy protection advocates and others who were saying people should opt out of the Commonwealth's My Health Record, that once you were in it, everything about your medical treatment had to, and would, go into the record.  Hence, the risk was that sensitive infomation that might hurt careers or relationships (you know, STD test results, abortions, drug addiction) would all be in one easy place for hackers or a malevolent arm of the government to find and use against you.

It was not until this morning, and on FM breakfast radio of all things (I was driving a teenager to school) that I understood that patients can ask to not have sensitive matters entered on it.   I then flipped over to a Radio National discussion of the scheme, and was frustrated that no one there confirmed that very simple and pertinent point.

So, it's up to me to check on line, and yes, here's a part of the government's website explaining to doctors how this works:

Under the My Health Records Act 2012, healthcare provider organisations are authorised to upload information to the My Health Record System. This means that, subject to the situations described below, there is no requirement for a healthcare provider to obtain consent on each occasion prior to uploading clinical information. There is also no requirement for a healthcare consumer to review clinical information prior to it being uploaded.

It may be considered good clinical practice to advise a patient that you will be uploading information to their My Health Record, particularly if this information might be considered sensitive. This approach is recommended by the Australian Medical Association in its guide to using the My Health Record system (section 4.5).

Situations where documents should not be uploaded

If a healthcare consumer specifically asks a healthcare provider organisation not to upload particular documents or information to their My Health Record, the healthcare provider organisation must comply with the person’s request. This is a condition of your organisation’s registration with the My Health Record system. You can advise the patient about the potential risks of excluding information from their My Health Record and explain the benefits of ensuring all information is included. However, you must comply with their final decision, and not upload the information, if this is requested.

I am a bit puzzled as to why the government is not making this a very clear point whenever they are defending the "opt out" nature of it.

Repeat after me, Minister:   "Yes it is a system you can opt out of overall - but you will be missing many potential benefits.   But also - you can opt out of it on a case by case basis - if you have a condition for which you want maximum privacy, just tell your doctor not to upload it onto your record and they must comply."